1 ”Use of artificial intelligence and biology systems for the diagnosis and personalized risk assessment for inherited kidney disease, focusing on Alport syndrome” 2 “ArmTracker: A portable system for assessing motor function of the upper extremities during daily life for patients with Duchenne muscular dystrophy and spinal muscular atrophy” 3 “Development of personalized treatments in rare genetic diseases causing pediatric parkinsonism” Congratulations to our researchers and partners and of course, congratulations to the rest of the projects.
Share4Rare is a system in which patients with a diagnosis can interact, communicate, and share knowledge with other users sharing the same diagnosis. It will also bridge the user to the most relevant patient organizations according to its disease. The question for Share4Rare is whether the platform could benefit the undiagnosed populations by exploiting its AI-based design. This design aims to foster the knowledge on rare diseases through collaborative intelligence built on equity principles.
TECNIO is the accreditation granted by the Generalitat of Catalonia through ACCIÓ to identify and give visibility to the technology developers of the R&D&I system of Catalonia. This should help to encourage the activity of the Catalan technology market among technology generators, buyers, facilitators, and other collaborators in the process, such as consultants and business schools.
This project pursues improving the following objectives: (1) identifying the existing technologies; (2) reinforcing the visibility and external projection of R&D&I in health-technologies in Catalonia and their international alliances; (3) setting up an environment of excellence that encourages attraction and catalyzes talent; (4) contributing to the diversification and hybridization of technologies within the medical field; (5) promoting cooperation; (6) becoming a technological observatory to detect trends and opportunities of the health sector; (7) creating the mechanisms for the promotion and valorization of the Catalan health technologies; (8) providing a customized support to research groups in order to validate, push and launch their technologies into the market.
The congress is addressed both at the scientific community and at patients and families, and will tackle different topics related to the current pandemic: study of new vaccines, psychosocial impact, consequences of the disease, access to treatments, healthcare models, etc.